一位 28 歲剛確診全身性紅斑性狼瘡(SLE)的女性告訴護理師她週末計畫到海灘度假村曬太陽。她臉上有典型的蝴蝶斑(malar rash)。為避免疾病惡化(flare-up),護理師應提供哪些衛教?
A 28-year-old female newly diagnosed with Systemic Lupus Erythematosus (SLE) tells the clinic nurse she plans to spend the weekend sunbathing at a beach resort. She has the characteristic butterfly (malar) rash on her face. Which instructions must the nurse provide to prevent a disease flare-up?
- ARecommend daily heavy weightlifting to strengthen joints affected by lupus arthritis.建議每日進行重重量舉重訓練,以強化受狼瘡關節炎影響的關節。
- BEncourage extended sun exposure to absorb vitamin D and naturally heal the rash.鼓勵長時間暴露在陽光下,以吸收維生素 D 並自然癒合皮疹。
- CStrictly avoid direct sunlight, apply broad-spectrum SPF 50+ sunblock daily, wear protective clothing and wide-brimmed hat, and plan indoor activities.✓ 正解嚴格避免直接日晒,每日塗抹廣效型 SPF 50+ 防曬乳,穿著防護衣物與寬邊帽,並安排室內活動。
- DStop all corticosteroid medications immediately upon arriving at the beach.抵達海灘時立即停止所有皮質類固醇藥物。
紫外線(UV)暴露是 SLE 最常見的疾病惡化觸發因素。UV 會誘發皮膚與全身性發炎,可能引發狼瘡腎炎(lupus nephritis)等致命併發症。 選項 C 正確:嚴格避免直接日曬、每日使用 SPF 50+ 廣效防曬乳、穿著防護衣物與寬邊帽、規劃室內活動是 SLE 病人標準衛教。 選項 B 錯誤:曝曬會直接觸發疾病惡化。 選項 A 錯誤:劇烈運動會加重關節發炎與疲勞。 選項 D 錯誤:擅自停用 corticosteroid 會引發腎上腺危機與疾病猛烈惡化。
UV exposure is the most common trigger for SLE flares. UV induces both cutaneous and systemic inflammation, potentially triggering life-threatening complications such as lupus nephritis. C is correct: Strict sun avoidance, daily SPF 50+ broad-spectrum sunblock, protective clothing, wide-brimmed hat, and indoor activities are standard SLE education. B is incorrect: Sun exposure directly triggers flares. A is incorrect: Heavy exercise worsens joint inflammation and fatigue. D is incorrect: Abrupt corticosteroid discontinuation causes adrenal crisis and severe flare.
「SLE (紅斑性狼瘡) = 看到大太陽(Sunlight)就逃跑 + 絕對要防曬 (Sunscreen/Hats)」是護理免疫學的超級重點。這些年輕病患如果去海邊曬了一下午,隔天常常就是免疫爆發、急性腎衰竭住進加護病房。